Day 7 St Louis - Post Op Day 2!

Still cold in St Louis, but the temperature seems to be coming up to -3 degrees, hoorah!! :)

The plan today was to leave Deryn get familiar with the sibling playroom for when Dylan starts his therapy. However, the fire alarm went off in the hotel at 11.30 last night and Deryn didn't get back to sleep until 4am, so by the time we got to the hospital, the shuttle ride had knocked him out, poor child! :) Today is post op day 2 for Dylan and he is doing so well! The spasms are under control now which is great, Dylan lets out a little cry when he's being turned but in between that he's great, he's eating and drinking and holding it all down too!! In the early hours Dylan will be disconnected from the heart monitors and epidural and he will start to take pain relief orally. It'll be nice to have him unhooked from everything. Physiotherapy starts bright and early at 9.30 tomorrow morning and the team here will show us how to transfer Dylan (dreading that part!) Dylan will have another physio session at 2pm tomorrow. Let's hope it's not too rough on him.

Mammy is on night shift tonight.... I'll probably get more sleep here! :)