So it's still like the arctic here in St Louis but nothing warms your heart better than seeing your baby doing so well. He's had a few ups and downs today but by and large he's been smiling when he's not sleeping! :) 
Dylan did start to have some muscle spasms in the early hours of this morning and valium seemed to be controlling them for the most part but he started having them again (not very bad) about 45mins before he could have his next dose of valium so they started him on a long acting muscle relaxant and it appears to be doing the job intended, the staff here are great, I couldn't fault any of them, they are all lovely people! Daddy is on the night shift again, so more updates to follow but he just amazes me! :)
Deryn has been great too, he's not really adjusting to the time difference yet and he's in his terrible two's phase so not the best time to bring him anywhere, but with everything that has been going on he really has been such a great little boy! So proud of both my boys x
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