Day 27 St Louis!

So Dylan started off early today getting his casts off, woohoo! :) The experience was a little bit traumatic for Dylan, nothing hurt him but the sound of the blade scared him, every time the blade stopped he was fine though. Thanks to Dr Dobbs and Dr Park, Dylan quite literally has new legs and he loves using them!! :) 

Dylan was back over to the hospital a second time for some physio with Michael. Dylan did mainly walking and trunk work today, he did really well on the treadmill, smashing previous records at 8mins 18secs with only 2 rests!! 

Dylan also wore his splints all day today with absolutely no complaints, they are much softer than his other ones and way more flexible. 

It was a sunny day today but the breeze was quite cold so we wrapped up and took a walk to the science centre, it was great on a weekday the kids actually got to do some stuff!! :) 

Deryn was very cranky near the end of it though (as he was up all night!) so when we came back to the hotel he had a nap and we didn't budge after that!! Dylan has 2 more physio sessions and an appointment with Dr Park (hopefully we'll get a picture with Dr Park too!)

Day 26 St Louis!

Dylan had a great day today in physio, loads of work done with loads of smiles!:)

Dylan started out doing high kneeling full of smiles playing with one of his many favourites Mr Potato Head, then walked his way to the total gym for loads of leg work, did some more trunk and leg work on a balance seat (don't know the name of this but need to get it!) popping bubbles and finished up on the trike.

Dylan's trunk is still weaker than before surgery, but he's definitely getting stronger and stronger everyday. We can already see the strength he's gaining in his legs, just this evening Dylan stood by the window for AGES (about 10 mins but that's ages for Dylan), I helped Dylan with posture and balance but he held the majority of his weight on his own two legs!! :) It may be dull here in St Louis but Dylan's future looks brighter and brighter every day! :) All those wishes being wooshed over here by all Dylan's classmates are working really well, he's doing so good and can't wait to see all his friends! :) 

Day 25 St Louis!

Dylan had an OK day today, there was some protest, but plenty of smiles too! Dylan did some work again on the total gym, some kneeling, some walking, some work on the trike and even some work with bubbles, which of course, he loved!! :)

It was so cold today in St Louis that we had little flurries of snow, brrrrrr! But the kids didn't mind the cold so much as they got a little bit of spoiling in the Disney store! :) 

We finally got to do The Cheesecake Factory today and all I can say is Yum! We all loved it, Dylan's last week is a busy one but we'll definitely try to make time to go back for more before the week is out!

Day 24 St Louis!

Nothing much to report, today was a miserable day in St Louis, misty rain and fog, so safe to say everyone had a well earned rest today, the furthest we ventured was The Dubliner for dinner. Dylan has another busy week ahead of him with physio everyday plus an early appointment Wednesday to get his casts off and another appointment on Friday with Dr Park. Dylan is still doing great, in good form, pain free and loving his new legs!! :) 

Day 23 St Louis!

The plan today was the science centre, the arch and shopping, 2 outta 3 ain't bad! :) We got down early to the science centre so the kids could actually get to use some of the things down there because once it gets busy in there you haven't a hope of using anything! 

The arch was on the cards for after as it was a lovely day, like summer again, but another family told us that you need to go up steps to get to the very top which is kind of hard with a wheelchair :-/ We still might check it out tomorrow though...who knows? 

We did get to go shopping though, hooray! After 2 weeks of tough physio therapy we were all in need of some retail therapy! :) Both boys are tired but in great form. Dylan is coming on great, tonight he was standing by the sink (supported mostly for balance as he held most of his own weight!) to brush his teeth, this is normally done sitting in his chair or held in our arms, again something very simple for most, but the very start of a future for Dylan with some independence! 

Day 22 St Louis - 2 weeks down, 1 to go!

Dylan was in great form today! Full of smiles in physio, he's doing so well, I'm amazed! :) Dylan did a lot of work on his trunk today with bench work, high kneeling and half kneeling (it's so easy now to get him into half kneel, it was so hard before due to tightness!) he did a little bit of walking too!

Dylan is just on neurofen now for pain and is doing just fine, he did have a couple of muscle spasms last night but nothing very severe thank god! Both boys are tired but they are doing so much! :) The weather is supposed to be nice for the weekend, we didn't get to go shopping today so we're off to the science centre again tomorrow nice and early and then off for some shopping, Dylan has put in 2 hard weeks of physio so deserves a treat and with so much attention on Dylan at the moment Deryn deserves a bit of spoiling too :) 

Day 21 St Louis!

Dylan remains in good form and pain free with the help of calpol and neurofen (or whatever the American versions are called!) Dylan had another good day in physio today, he started out on the total gym and scooted his way to the treadmill where he did a pretty amazing 6mins 37secs! 

We did unfortunately have some tears nearer the end of the session when he was working on his arms but those tears went away quick enough when the trike appeared :) 

Between a tough physio regime and the sibling playroom the kids were really tired again today and it was really cold so we stayed indoors again this evening. Shopping is on the cards for tomorrow temperature (and temperaments) permitting! :)